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About BE4

 


What's in a Name? BE4

'BE' is the shortened version of Black and Minority Ethnic people (BME).

Equity, Empowerment, Effectiveness, and Efficiency are four principles taken from the strategy document 'Improving Mental Health Services in Wales: A Strategy for Adults of Working Age'. The strategy, together with the 'Mental Health National Service Framework for Adults in Wales', form the template by which mental health and related social care is to be assessed and monitored.

BE4 also can be understood phonetically as 'before'. Taken as a fundamental aspect of community development theory and practice, the name serves as a constant reminder of the need to consult Black and Minority Ethnic groups before, rather than after the the launching of regional and national frameworks and strategies and the implementation of policy.


AWETU Black and Minority Ethnic Mental Health Group

AWETU ( 'Our Unity' in Swahili), is the first national organisation dedicated solely to working with the public and private sector, user and survivor groups, and voluntary agencies to promote and foster the mental health of Black and Minority Ethnic individuals, families, and communities in Wales.

There is little documentary evidence which traces the early stages of AWETU. However, the Group's establishment in 1988 resulted from a growing concern among a number of professional workers at the 'over representation of black clients within the mental health field' and the need to improve the sensitivity of services to black people receiving statutory mental health services.

At its inception the primary concern was around 'issues' and the need to establish a group with a campaigning approach rather than one that itself delivered services. However, soon it was appreciated that if AWETU did provide a service this would enable it to play an important and more influential part in changing the character and sensitivity of services to black people with mental health problems.

Initially approaches for funding were unsuccessful but in 1994 the potential for funding from the Health Authority led to the formulation of an idea to establish a cluster of initiatives covering 'advocacy', 'befriending' and a 'drop-in' facility. These schemes were devised by the South Glamorgan Mental Health Project and all three proposals were agreed by the Health Authority. Each of these initiatives has developed separately and at a different pace.

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Which Black and Minority Ethnic Groups in Cardiff are being targeted?

People of

  • African
  • Caribbean
  • Chinese
  • Bangladeshi
  • Indian
  • Pakistani
  • Vietnamese

descent living in Butetown, Grangetown, and Riverside.

 

Background

 

For many researching 'race', ethnicity and health, it is axiomatic that disparities exist within the health and social care systems, with 'race' and ethnicity, socio-economic status and geographic location impacting on the level of access to treatment and information, as well as utilisation, experience and knowledge of mental health and social care provision.

Studies include the over-representation and at times misdiagnosis of Black minority groups with specific mental illnesses in certain sections of the mental health services; the under-utilisation of service provision due to the low take-up rates of minority groups; the impact of terminology (i.e. ethnicity, 'culture- bound disorders'); national surveys on health and mental health across different ethnic groups; and exploration into the development of anti-racist health promotion and practice.

Drawing on the range of studies in the area of 'race', ethnicity and mental health, the specific consideration of this study is improving the quality of access to information and appropriate treatment in mental health and social care to specific groups in living in three of Wales' most ethnically diverse wards.

Moreover, BE4's programme of research has its origins in key themes, strategies, and frameworks being developed in the Health and Social Services, the Voluntary Services, and the Health and Social Care Research and Development divisions of the Welsh Assembly Government (WAG). Rooted in the fact that mental health has been made one of the government's three health priorities, these documents clearly highlight the WAG' commitment to:

  1. developing the region's health and social care services
  2. ensuring that the Voluntary Sector is at the heart of National Assembly policy, and ;
  3. ensuring that proposed policy and action is informed by clear research directives.

Also underpinning the mental health and social care strategies and frameworks being rolled out across Wales is the commitment to developing an equitable health and social service underpinned by closer inter-agency work and client collaboration. The aim of this study is to contribute to these developments by assessing and developing ways to mainstream the mental health and related social care needs of Black and Minority Ethnic groups.


Service Provision

It is evident from the research that how services are used and experienced by individuals from different groups is just as much a product of their own beliefs, needs and expectations as it a product of the attitudes and perceptions of service providers.

While much is known about the problems facing Black and Minority Ethnic people in accessing mental health services, more research is needed in developing ways of delivering appropriate services and making information more readily accessible. Recognition of these difficulties has created an impetus to address service delivery issues for Black and Minority Ethnic people.

Drawing on the experiences and perceptions of mental health held by Black and Minority Ethnic groups, the questions we are asking are:

  • How can we contribute to the development of a more equitable service provision in Wales?
  • How do we identify the feasibility of implementing policy recommendations matched to diverse local need, while taking account of local service developments and resource distribution in this the heady days of devolution and new governance?

Undertaking such a project requires a research framework that can produce explanatory models capable of disseminating knowledge on how to operationalise effective inter-agency working for the benefit of Cardiff's increasingly diverse population. The aims, objectives, rationale, and the methodological framework used are designed to address these issues.

 


Rationale of the BE4 Study

  • In seeking to improve the quality of access to information and appropriate treatment in mental health and social care provision to targeted Black and Ethnic Minority groups in Cardiff, the aim is to acknowledge disparities in health provision and contribute to the development of policies and practices to reduce them.
  • Although aware of the need to chart inequalities in health care, such a task is beyond the scope of this research project. Rather, the aim will be to document the experience of service users and gather data on perceptions of mental health from members of the target groups. Moreover, sensitive to the ways in which health is socially and unequally mediated, the aim of this study is to develop a knowledge base and framework of practice which is grounded in theory, whist cognisant of political and anti-racist practicalities, and the need to provide clear evidence of utility and usefulness.
  • The research is based on the understanding that as mental health is multi-dimensional concept with cross-sector involvement and intervention, there is a need to devise a community-based, multi-agency/multi service approach. The practice framework is to be rooted in the input of service providers, users, as well as non-users from the target groups. Lastly, as this is the first such study of this kind since devolution and the creation of the Welsh Assembly Government, the overriding aim will be to provide a practice framework that can evaluated and developed further, and a knowledge base that can be drawn on by non-statutory as well as statutory organisations.

Aims and objectives of the BE4 Study

The aims of the project are to identify whether Black and Minority Ethnic people have fair and equitable access to mental health and social care services in the three targeted areas, and to identify if there are any gaps in access to service provision for Black and minority ethnic people.

The objectives of the BE4 Project are as follows:

  1. Determine current provision and use of services;
  2. Collect data from people belonging to Black and Minority Ethnic groups who have used mental health and social care services on their experiences of these services;
  3. Raise awareness to empower communities to access appropriate services that are available;
  4. Provide a baseline of evidence for planning to identify, monitor, and address mental health inequalities;
  5. Draft a collaborative multi-professional/multi-agency practice framework for assessing and providing appropriate mental health and related social care services for Black and Minority Ethnic people.

Programme of Research

Established in June 2002, BE4 is funded for 18 months and is being developed across a series of inter-related modules.

  1. Profiles of Black and Minority Ethnic Groups in Butetown, Grangetown & Riverside
  2. Equity:Assessing the mental health and social care needs of BE4's target groups
  3. Empowerment, mental health and social care promotion & outreach
  4. Effectiveness: Establishing monitoring frameworks, and developing policy and practice
  5. Efficiency:Documenting & disseminating information about the project activities

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How will the information be gathered?

We intend to facilitate focus groups and conduct interviews with:

  • Adults (18 - 65 years of age) who currently, or in the past have experienced mental health problems.
  • Adults (between 18 - 65 years of age) comprising the targeted groups who have no history of mental health problems.
  • Health Care professionals

The data gathered from service providers, together with data gathered from service users and others, will be channelled back to service providers so as to impact practice and policy. The aim will be to use the data to development ways to access to appropriate care. Also, the data will provide a much-needed baseline of evidence of Black and Minority Ethnic people's experiences and perceptions of mental health and knowledge of current health and social care services.

The project has sought ethical approval from the University of Glamorgan's Research Ethics Committee and the Local Research Ethics Committee.

  • All data collected in this project will be confidential to the research team
  • All published information will be anonymised
  • All participants will be fully informed and formal consent will be requested before participating
  • All participants have the right to withdraw from the study at any time

 

How can you contribute to the work of the BE4 Project?

  • Are you a member of one of the target groups?
  • Are you between 18 - 65 years of age?
  • Are you, or have you in the past, made use of mental and related social care services in Cardiff?
  • Are you carer or someone who uses or has made use of these services in the past?
  • Would you like to share your knowledge and understanding of these services?
  • Would you like to contribute to making these services more culturally sensitive and equitable?
  • Do you work with BME groups?
  • Are you a health care professional with an interest in the needs of BME groups?
  • Are you a health care professional who would like to share your knowledge and understanding in developing more equitable service provision?

If you have answered YES to any of above questions and have time to be interviewed or to attend a discussion group, please get in contact!

 

Management & support structure


BE4 Staff & Core Research Team

BE4 Staff

Dr. Roiyah Saltus - Blackwood Research Fellow rsaltusb@glam.ac.uk
Kalibur Kaur-Mann Research Assistant kkaurman@glam.ac.uk

Research Team

Professor Susan Procter Principal Investigator, Gwent Healthcare NHS Trust Sue.Procter@gwent.wales.nhs.uk
Mrs Liz Williams Senior Lecturer, School of Care Sciences, University of Glamorgan ewillia3@glam.ac.uk
Ms. Suzanne Smith AWETU Manager awetu@nascr.net

 


BE4 Steering Group Members

Tim Bennett Riverside CMHT
Bronwen Bermingham 'Barefoot' Health Workers Research Project, CLHG
Pat Gregory Triangle Project
Alan Herbert South Riverside Community Development Centre
Linda Newton Cardiff & Vale Mental Health Community Development Project
Tony Hendrickson Vice-Chair, AWETU Managment Committee
Judy Noble Families and Community Care
Karen Roberts Research Unit, School of Care Sciences, University of Glamorgan
Jane Williams Cardiff Local Health Group

 

BE4 Partners

David Lewis Whitchurch Hospital
Phil Chick Mental Health Development Manager, CLHG

 

BE4 Project Advisers

Marilyn Enfield Race Equality First
Gary Cordle Mind Cymru
Voirrey Manson NHS Equalities Unit

 

Champions

Professor Joyce Kenkre Research Unit, School of Care Sciences,University of Glamorgan
Mr. Jim Richardson School of Care Sciences, University of Glamorgan
Mr. Charles Willie Director, Equality Policy Unit, Welsh Assembly Government

 


BE4's Funders - Health Services Policy and Development Division, WAG

The NHS Wales Department within the Welsh Assembly Government, lead by its Director Ann Lloyd, is divided into Divisions including the Health Services Policy and Development Division (previously known as the Primary and Community Health Division (PCH). This Division is responsible for policy and management of primary medical, dental and ophthalmic services, GPs, prescribing and pharmacy, mental health and community health issues. The sub-division that deals specifically with mental health and community health issues has a very wide remit. It includes development of policy and practice in relation to mental health, palliative care, health care of the elderly, continuing care and chronic illnesses. For example, this branch is currently working on National Service Frameworks (NSFs) for services for diabetes, mental health, and older people's health.

BE 4 Contact: Tina Jones


The Care Sciences Research Unit, University of Glamorgan

The Care Sciences Research Unit at the School of Care Sciences was established in 1996, initially as the Nursing and Midwifery Research Unit. The change of name is symbolic of the growth of the research culture at the University of Glamorgan. It reflects the move to integration of research across complementary disciplines, sharing common principles of innovation, excellence and relevance in research that has the ultimate aim of improving health.

The Care Sciences Research Unit works in collaboration with the Welsh Institute for Health and Social Care (WIHSC), also part of the School of Care Sciences. The Unit supports an enthusiastic team of researchers headed by Professor Donna Mead, Head of the School of Care Sciences. Since its establishment, the Unit has achieved considerable success in attracting funds for its expanding portfolio of research. Research groups within the Unit span the spectrum of pure and applied research in nursing, midwifery and health visiting and all the contexts within which they operate, including health policy, education and management.WIHSC is a self-financing institute within the School, established in late 1995. Under the direction of Professor Morton Warner, its prime objective is to facilitate a programme of activities in research, education and consultancy, designed to find practical solutions to practical problems in the area of health and social care. The School cherishes collaborative projects with clinical colleagues, actively supporting links between research and clinical practice.

Click HERE for a list of projects currently underway at the Research Unit

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This research was commissioned by